Living with

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This website is intended for carers and patients living with haemophilia.

living with inhibitors


Approximately one in three children with severe haemophilia develops inhibitors, usually within the first year of treatment with replacement clotting factor. Your child will therefore have a blood test to identify if an inhibitor is present.

The inhibitor can make the medication used to treat haemophilia less effective and bleeds become more difficult to control.  Your Haemophilia Centre will advise you on how to treat bleeds and they may discuss treatment strategies to try to eliminate the inhibitor.

It is not necessary to prevent your child taking part in day to day activities and you will soon be aware of what he can or cannot safely do. However, if you have any concerns your Haemophilia Centre will be able to give you advice. Gentle exercises such as swimming are important to help maintain strong muscles and joints.

It is important for schools and organisations to be informed about haemophilia and specifically about the effects of an inhibitor. In particular, information on how to recognise a bleed is vital (click here for more information on how to recognise a bleed).

Families with children affected by an inhibitor can get additional advice and support from their Haemophilia Centre, support networks, local Haemophilia Society groups and the Inhibitor Support Group (click here for useful links).