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This website is intended for carers and patients living with haemophilia.

Living with Haemophilia

Travelling with kids

For the mother or father of a child with haemophilia, going on holiday can be a bit daunting, especially the first time. But families of children with haemophilia routinely travel all around the UK and abroad without problems. It's just a matter of planning.

Choosing your holiday

  • Check out excursions included in the package for suitability for a child with haemophilia.


  • You might not need specialist insurance. You may find that if you disclose the facts, you are all normally covered by the insurance that 'goes with the holiday'.
  • Get insurance for the whole family fixed as soon as you book, in case you have to cancel.

When flying

  • If flying, plan well ahead. Try to make sure you get a seat with the bulkhead in front so no one can push their seat back onto your legs. Airlines are pretty good if you give them notice, but make sure you have the details of a local contact/representative for the airline in question at your destination so that prior to departure you can confirm seating on the return flight.

Doctor's letters

When travelling always have the originals of doctor's letters easily accessible and keep copies (in a separate part of your baggage) as a back-up.

Don't forget to pack

  • Passports
  • Factor (in cool bag)
  • Medical insurance documents
  • Your child's medical identification bracelet
  • Phrase book
  • Medication for common illnesses such as diarrhoea
  • Plasters/antiseptic wipes
  • Anti-malarial tablets (if applicable)
  • Insect repellent
  • Water purification tablets
  • Paracetamol and similar for children
  • Sunglasses
  • High factor sunscreen (at least SP 15, SP 25 for children)
  • Well-fitting sandals
  • Loose fitting clothing
  • Sun hats
  • Swimming costumes

Always take your own factor, infusion kit and other prescribed drugs with you. Your child's particular factor may not be available where you are going and, even if it is, it may be expensive and hard to get.

Make sure you take enough factor for prophylaxis for the whole of your trip, plus some extra in case your child is unlucky enough to have a bleed.

Always carry your child's factor and kit in your hand luggage, both to make sure they don't get lost, and to have them to hand for Customs inspection.

Make sure you have your doctor's letters on you, not in the hold.

While you are away

Make sure your child always carries some form of medical information identification in case of accident, such as a MedicAlert bracelet or a Green Card from his treatment centre, detailing his condition.

In emergency, telephone the nearest haemophilia centre, using the list of phone numbers and addresses available on the WFH website (World Federation of Hemophilia).

You may also be able to get advice and assistance from the various national haemophilia societies. Their phone numbers are also on the WFH website.